It’s 12pm on Wednesday 18th March, I’ve just finished a Skype meeting with both Tina Boden in Scarborough and Claire Bullimore in London discussing how me and Claire might work together in the future, I’m pretty excited! Anyway a meeting on Skype! Check out how modern I am!
Well several years after Tina first suggested it; a short time saying it was for divs, quite a long time wondering why anybody would be interested in what I have to say and the rest being disorganised and brain-injured, I’ve finally gotten around to writing this blog!
I’m suffering with pretty high levels of fatigue at the minute so I’m going to finish this then chill because I am in a debt of fatigue which has lasted around a week so far and I want to get on top of it. Ironically that’s what Claire and I are going to be working together on – talking about fatigue!
Rest! that’s what you have to do with fatigue, you have to give in to it as fighting it is pointless, attempting to fight it is the same as trying to get a car with no petrol in to run better by revving the engine harder. Thinking uses vast amount of calories, in fact a quarter of your cardiac output (blood pumped by your heart) goes to the brain. Before anyone burns their gym membership, quits juice plus, throws away their running shoes and replaces them with a book on philosophy, the bad news is that you can’t think yourself thin! I’m on empty and need to recharge, you recharge your brain by doing nothing! Fatigue is not you becoming a bit tired, it is your body and brain depleting itself of energy. The fatigue I suffer from doesn’t even have a name! Its called just that: fatigue! I pimp it up a little bit by calling it ‘neurological fatigue’, that word neurological gives the impression that I know what im talking about! Calling it that tends to demand a bit more respect than using its real name of ‘fatigue’, a condition that could be sorted by simply manning up!
Stimulation is what makes us fatigued and stimulation is anything that uses energy or burns calories. For example a busy bar has lots of stimulation; loud music, bright lights, fit boys/girls that attract your attention, all of which use up energy. Take the loud music, that has an effect on you especially if you like the song and start to dance! That uses energy. You have to shout above the music so people can hear and concentrate to hear other people – all that uses energy and remember what I said about thinking.? So just being in a bar environment burns a lot of calories compared to say a library! I find fatigue to be much like a smartphone where your overall energy level is your battery life and stimulation is the phone’s features that you use. For example if you have your brightness turned to max, you’re playing Candy Crush (or whatever you crazy kids are into right now!?) with music playing you’re going to run your battery down pretty quick just like the bar! You can make your phone battery last a lot longer if you have a charger handy and you keep plugging it in for 5 minutes every hour. That is just like if you have a regular power-nap, you’ll never get back to 100% battery but its enough to keep your fatigue at bay! Don’t let your phone’s battery life get to 0% though as plugging it it will not start to charge it straight away, you have to wait like ten minutes before it starts to recharge. I’ve found the same with my fatigue, if I let myself get too tired then a 10 minute power-nap is no good, I need to go to bed for hours before I’m refreshed. This is not scientifically proven but what I have found from my own experience. If you live with a brain injury and have found the same then please let me know.
So this is my first attempt at a blog! I want to write more and cover different topics, if you liked this or if you didn’t like it then please let me know why by commenting on my Facebook page, leave me some feedback! Anything you would like me to cover in my next blog, please let me know! I want this to be a good thing, a hub for discussion on traumatic brain injury, somewhere you can get answers to the questions you thought were too weird to ask! If you don’t want to post them on the page then private message me and if I can’t answer it I will find someone who can. I look forward to hearing from you!